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Hello world!

March 13, 2023March 13, 2023 lifewithlupus_e2w0hi

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17 Members had joined our Patreon

Ben's Friends and WiTT

Empowering patients with Lupus to get the support they need, by making it easy to ASK for and receive help. 

Learn more how to get help or how you can help.

Recommended Reading

  • We Need Your Financial Support
  • Help Advance Lupus (SLE) Research from Home
  • Lupus (SLE) At-Home Research Opportunity
  • Looking For Your Life With Lupus Stories!
  • A Guide to Navigating Interactions with Lupus Patients

Ben's Friends Sites and Social Media

List of Ben's Friends Patient Communities
Ben's Friends Facebook
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Ben's Friends YouTube

Blogs

  • Helpful Information about Primary Sclerosing Cholangitis
    Primary Sclerosing Cholangitis (PSC) is a rare and chronic disease that is characterized by inflammation and scarring within the bile The post Helpful Information about Primary Sclerosing Cholangitis appeared first on News From Ben's Friends.
  • Best Ways To Interact with Hypermobile Ehlers-Danlos Syndrome Patients
    Hypermobile Ehlers-Danlos syndrome (hEDS) is a rare disorder caused by genetic mutations affecting collagen, a crucial connective tissue protein. It The post Best Ways To Interact with Hypermobile Ehlers-Danlos Syndrome Patients appeared first on News From Ben's Friends.
  • Your Guide to Understanding the Progressive Impact of Spinocerebellar Ataxia on Patients and Families
    Spinocerebellar Ataxia (SCA) is an inherited disorder that primarily affects the cerebellum, the part of the brain responsible for coordination The post Your Guide to Understanding the Progressive Impact of Spinocerebellar Ataxia on Patients and Families appeared first on News From Ben's Friends.
  • Know your family history: Unmasking Von Willebrand Disease’s Pervasive Impact 
    Executive Summary Von Willebrand Disease (VWD) is a lifelong bleeding disorder that poses both physical and social challenges. For instance, The post Know your family history: Unmasking Von Willebrand Disease’s Pervasive Impact  appeared first on News From Ben's Friends.
  • Complex Regional Pain Syndrome: A Burdensome Journey of Relentless Pain
    For some people, taking a shower, feeling the wind on their skin, or their clothes brushing their legs can bring The post Complex Regional Pain Syndrome: A Burdensome Journey of Relentless Pain appeared first on News From Ben's Friends.

Testimonials

Ben created this wonderful site. His Twitter feed is filled with many stories of hope over great challenges.

Sharyn

Ben’s Friends continues to expand this gift of love and support by creating more communities for folks sharing different great health challenges. Ben’s growing patient support sites continue to provide support with its members while new members share the challenges and share the joys. Thanks to Ben, Shalon and all the others who manage this site. It is a gift that keeps on giving.

--- Sharyn

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Your website then was my biggest support.

Pat

We met back in 2006, in Austin at St.Davids. I and my daughter, Britanny, who was then 16 years old were new to the site. Your website then was my biggest support and we came to know that so many others are struggling through very similar issues. Today Brittany is 21 and married almost a year ago. Britanny now lives here in Austin and had gone for a year in San Diego. After her gamma knife operation, we had to wait the two long years. I am so proud of YOU!!! You are such a wonderful example of turning the hurts and pains of this life into positive! May you be ever so BLESSED!!!

--- Pat

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